Under Construction

This site is still under construction. Please excuse the mess and inconsistencies. All will be fixed eventually. It is best to not link to individual pages yet, as their URLs are very likely to change. Once this message disappears, it will be safe to use specific links. In the meantime, please just link to the site's home page, which can always be found by clicking on the image in the title area at the top of any page.

01 January 2009

ORGANIZATIONS

American Liver Foundation
http://www.liverfoundation.org/
In New York City

British Liver Trust
http://www.britishlivertrust.org.uk/content/home/default.asp

CDC - Hepatitis C page (government)
http://www.cdc.gov/ncidod/diseases/hepatitis/c/index.htm
http://www.cdc.gov/ncidod/diseases/hepatitis/ (Viral Hepatitis Main Home Page)

Deutsches Hepatitis C Forum e.V. Germany (most of site is in English)
http://www.hepatitis-c.de/hepace.htm
The only place you'll see German is in the "Literature" link, but there is an English option in the sidebar. This is a great site - lots of information and resources pertinent to the U.S. See also their page on Alternative resources under my "Alternative & Complementary Treatments" section.

Epidemic.org Hepatitis C
http://www.epidemic.org/
Designed and developed by the C. Everett Koop Institute at Dartmouth College

FAIR Foundation
http://www.fairfoundation.org/
The Fair Allocations In Research Foundation
$3,084 is spent on research for every AIDS patient, while only $25 is spent on the HepC patient.

Healing Well's Hepatitis Library
http://www.healingwell.com/library/hepatitis/

HCV Advocate
http://www.hcvadvocate.org/

The Hepatitis C Support Project(HCSP), is a non-profit orgnization founded in 1997 to address education, support and services.
Also see HBV Advocate for Hepatitis B information, and the "Hepatitis B" heading in the sidebar at right.

Hep C Challenge
http://www.hepcchallenge.org/
HCCAP (Hepatitis C Caring Ambassadors Program) The book, below, is an excellent resource. The graphics are a little challenging, as the links to the chapters are all put together like a paragraph at the bottom of the page and in quite small print. It is, however, worth the effort.
  • Hep C Challenge's Online Book: "Choices" http://hepcchallenge.org/choices/coverpagep.htm
  • While the links to the chapters are found in the link just above, the Table of Contents is here in a wonderfully readable form, but here there are no links, just the text.
HepC Coalition
http://www.hepccoalition.com/

Hep C Connection (in Denver, Colorado)
http://www.hepc-connection.org/

This is an "education, support, and prevention network for those affected by, or at risk for, hepatitis C." It is "one of the nation's premier hepatitis C-focused advocacy organizations and the only one of its kind in Colorado." There is a 28-page pdf Resource Guide at their site.

Hep C Network - NHCAC - (National Hepatitis C Advocacy Council)
http://www.hepcnetwork.org/
National Hepatitis C Advocacy Council



Hepatitis C Information Central
http://hepatitis-central.com/

Hepatitis C/HIV Multicultural Outreach
http://www.hepcmo.org/
in Kansas City, Missouri

Hepatitis Foundation International
http://hepfi.org/
In Silver Spring, Maryland

Invisible Disabilities Advocate
http://www.myida.org/

HepNet (Canada)
http://www.hepnet.com/
The Hepatitis Information Network
While there are a number of articles here, the site appears to be archival only, with no new entries since 2001 that I can find.

NASTAD Viral Hepatitis Program
http://nastad.org/Programs/viralhepatitis/
National Alliance of State & Territorial Aids Directors: Bridging Science, Policy and Public Health (A non-profit national association of state health department HIV/AIDS program directors)

NATAP National Aids Treatment Advocacy Project
http://www.natap.org
963 articles on Hepatitis C
346 articles on Hepatitis B

NHS Hepatitis C Awareness (UK)
http://www.hepc.nhs.uk/index.asp

Public Health Agency of Canada - Hepatitis C
http://www.phac-aspc.gc.ca/hepc/hepatitis_c/index.html

The Hepatitis C Trust (UK)
http://www.hepcuk.info/data/usercontentroot/home/
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ALTERNATIVE & COMPLEMENTARY METHODS

NOTE: When choosing an alternative care practitioner, it is crucial that you inform yourself on the appropriate education your practitioner should have. For naturopaths, their degree should come only from medical schools that are accredited by the Council on Naturopathic Medical Education (CNME). This is the ONLY accrediting agency recognized by the United States Dept. of Education for accrediting programs in naturopathic education. Your naturopath should also have passed the required state and national licensing exams and they should, even if living in a state that does not yet have a licensing program of naturopaths, be licensed in a state that does. (Most of the wording of this information is taken from the Colorado Association of Naturopathic Physicians website.)
The only accredited Naturopathic schools in this country are:
There are other colleges in the process of accreditation. You can see this list on the Education and Training page of the COANP. I have not yet compiled info on appropriate credentials for other alternative practitioners such as homeopaths, Chinese medicine practitioners and the like. (Naturopaths often do include homeopathy and Chinese medicine in their practices, among other things.)

- - - -
It is always a good idea to check the dates of any information that appeals to you to determine whether or not it affects the validity of the article.

Bastyr University (Naturopathy)
http://www.bastyr.edu/default.asp
Type "hepatitis c" into their search box.

Canada's Hepatitis C Resource Library
http://www.phac-aspc.gc.ca/hepc/pubs/nc-hcp-sn-is/chapter6_e.html
Includes a list of herbs that are toxic for Hepatitis C

Chinese: Doc Misha's Hepatitis C Help
http://www.docmisha.com/applying/hepatitis_help/index.html
Chinese: Your Liver, Springtime and Traditional Chinese Medicine
http://www.hepcprimer.com/wordpress/2006/04/20/your-liver-springtime-and-traditional-chinese-medicine/
from Nicole Cutler, L.Ac., Hep C Primer, April 20, 2006

*Deutsches Hepatitis C Forum e.V. - Alternatives to Interferon
(Is in English) http://www.hepatitis-c.de/alternae.htm
Note on May 12, 2008: I see that the english version is no longer attached to these links, and I can't, with a quick exploration, seem to find an english version anywhere. Too bad, for there was lots of good info here. I'll try sometime in the next month to see if it exists anywhere.
Healthy Hepper
http://www.healthyhepper.com/

Hepatitis C: A Retrospective Study, Literature Review, and Naturopathic Protocol
http://www.findarticles.com/p/articles/mi_m0FDN/is_4_5/ai_65068473
18 pages long (small web pages)

Hep C Challenge's Online Book: "Choices" http://hepcchallenge.org/choices/coverpagep.htm
This book is mentioned in the "Organizations" section above, and has several chapters on alternative care. Here are direct links to those specific chapters:


Herbs That Are Toxic To the Liver (List of)
http://www.phac-aspc.gc.ca/hepc/pubs/nc-hcp-sn-is/chapter6_e.html
From Canada's Hepatitis C Resource Library

Natural Therapies and HCV
http://www.hepcvsg.org/nattoc.htm
Canadian Darlene Morrow's site

Naturopathic Treatment of Hepatitis C
http://www.hepcvsg.org/bayley1.html
Dr. David Bayley, BScK., N.D., North Vancouver

NCCAM (NIH - National Institutes of Health)
http://nccam.nih.gov/
National Center for Complementary & Alternative Medicine
Enter "hepatitis c" (in quotes) in the search box at the top right corner of the page. Or go directly to the Hepatitis C page here:
PubMed: A Conservative Triple Antioxidant Approach to the Treatment of Hepatitis C
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=
PubMed&list_uids=10554539&dopt=Abstract
Integrative Medical Center of New Mexico, New Mexico State University
Las Cruces, NM

University Health Clinic Specialty Care and Research Center
http://www.universityhealthclinic.com
/hepatitis-treatement-seattle.html (Yes, the spelling error in "treatement" is necessary for the URL to work)
Alternative treatment for Hepatitis C in Seattle (with very strong ties to Bastyr University). This is a one-of-a-kind center in this country - the largest for alternative treatment for Hep C.
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04 February 2007

RESOURCES - GENERAL

Dr. Koop - Hepatitis Health Center
http://www.drkoop.com/channel/93/12127.html

Financing Your Care (from Hepatitis Neighborhood)
http://www.hepatitisneighborhood.com/content/financing_your_care/default.aspx

Funding: Comparisons of Diseases - See how yours fares
http://fairfoundation.org/NIH_funding_2003-2008.pdf
From the FAIR Foundation (10 pages)

Hepatitis Activist
http://www.hepatitisactivist.org/

Hepatitis Doctor - Bennet Cecil, MD
http://www.hepatitisdoctor.com/
Many links here.

Hepatitis Neighborhood
http://www.hepatitisneighborhood.com/
(FORUM here)

HIV and Hepatitis
http://www.hivandhepatitis.com/index.html
This site is sponsored by pharmaceutical companies.

Home Test Kit ($60.00)
http://www.homeaccess.com/02/02/

Pam Langford's Hep C Links Page
http://web.archive.org/web/20030803041330/http://www.diac.com/~ekwall2/hepchat/links.shtml

The Combo Survival Guide from A to Z
http://www.hepcsurvivalguide.org/
A guidebook written by Hep C patients for Hep C patients undergoing Interferon/Ribavirin therapy. Last edited: 2002.

WebMD
http://www.webmd.com/
Type "hepatitis c" into the search box at the top of the page.
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07 January 2007

B L O G S - ANNOTATED

Here is a list of all the Hepatitis C related blogs I could find. Those that are no longer showing new entries are marked as such with the title text in grey.

A Fragment of Eternity
http://www.therays.ca/ted/
Entries from May 2006 to present. An "HIV/HCV co-infected poet" undergoing PEG-Interferon treatment.

An Uncertain Journey through HCV
http://uncertain4sure.blogspot.com/
Entries from July 2006 through present

Charlene's Hepatitis C Journal
http://www.hepatitis-c.de/charlene2.htm
Entries from November 1998 to November 1999

Chronic Hepatitis C - DebbieJo
http://chronichepc.blogspot.com/
Entries from January 2005 to present

From the First Chakra
Arizona USA (awaiting liver transplant)
http://www.thefirstchakra.blogspot.com/

Gathering Wool: Tales of a Black Sheep Living in Post-Christian America
Buzz Trexler, Tenessee USA
http://www.buzztrexler.com/blog/btblog.htm

Heppie Trekkie Journal - Haz
http://wychhaz.blogspot.com/
Entries from February 2006 to present

Hep C Journal
ELIZABETH ANNE BC Canada
http://hepcjournal.blogspot.com/

Hep C Journal
Nick Green, Derby UK
http://nickshepcblog.blogspot.com/

HepCandMe
http://www.hepcandme.org/
Male, in his 40's. Finished treatment Feb. 2007
Entries November 2005 to present

HEPCBOY UK
http://www.hepcboy.com/

Helen's Hepatitis C Website (Australian)
http://kickme.to/hepc/
Entries 2000 to 2003

HCV Positive - Miss Poppy (UK )
http://misspoppy.blogspot.com/
Entries from June 2005 to October 2006. Treatment withdrawn.

HCV Treatment Journal
http://suetoronto.blogspot.com/ Sue, from Toronto, Ontario, Canada.
Entries from March 2005 to March 2006. She has a new blog (not Hep C specific) at Sue, Toronto. http://www.neosuetoronto.blogspot.com/ Entries here run from March 2006 to October 2006.

Hepatitis C - Filosofette (NZ)
http://myhepc.blogspot.com/

Hepatitis C Outreach Project Blog
http://hcop.org/blog/
Entries from September 2006 to January 2007

Here Are the Young Men, the Weight on Their Shoulders
http://jasonpaultolmie.blogspot.com/
Jason Paul Tolmie, London UK ((lots links))

Liliana's World (UK)
http://purpleswallow.blogspot.com/
Entries from September 2005 to October 2006. Treatment failed.

Liver Log
Chris, USA
http://liverlog.blogspot.com/

Marie's Blog Colchester UK
http://rosinamarie.blogspot.com/
Entries December 2006 to January 2007

Martin's Hep C Site
http://www.theboltons.plus.com/
Martin Bolton, Suffolk UK

meandhepc - Steve Notts
http://www.stevenotts.blogspot.com/
Nottingham, East Mids, GB
Entries from June 2006 to present

Warrior*Pirate*Monk - Micheleara
http://beyondcrisis.typepad.com/growth_through_challenge/
Oregon USA
Spends "much of day exploring alternative forms of healing"
Entries October and November 2006

Minerva's Blog Scotland
http://itsmyaddress.blogspot.com/

My Hep C Diary - teastarwitch
http://teastarwitch.blogspot.com/
Entries from July 2006 through present

My 'Hepatitis C' Weblog - Ron Metcalfe (UK)
http://www.ronmetcalfe.com/blog/
Entries from November 2004 to present. Male, in his 50's. Wife is a complementary therapist.

Mission Nepal Parkness
http://journals.aol.co.uk/parkness/MissionNepal

Samples of a Brighton Thirty Something
Brighton UK
http://www.leatheradventurer.blogspot.com/

Sandi's Crusade Against Hepatitis C
http://www.creativeintensity.com/smking/
This is much more than a blog - she is also listed as a resource here on Hepatitis C Library. She runs the Yahoo group "CanHepC". http://health.groups.yahoo.com/group/CANHepC/

Show Me the Movie that Doesn't Deal in Black and White
Chris Vacano, Oregon USA
http://48weekflu.blogspot.com/

The Dragon's Lair - seadragonlady
http://www.seadragonladyslair.blogspot.com/
Norfolk, UK. Treatment stopped in 2003.
Entries from June 2005 to present

The World Through My Lens
Allan - California USA (used chinese medicine - Zhang protocol)
http://regentlynx.blogspot.com/

Welcome To My "HEP C" Llife
Jason Holmquist, Minn USA
http://jasondeanh.blogspot.com/
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