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This site is still under construction. Please excuse the mess and inconsistencies. All will be fixed eventually. It is best to not link to individual pages yet, as their URLs are very likely to change. Once this message disappears, it will be safe to use specific links. In the meantime, please just link to the site's home page, which can always be found by clicking on the image in the title area at the top of any page.

01 January 2009

ORGANIZATIONS

American Liver Foundation
http://www.liverfoundation.org/
In New York City

British Liver Trust
http://www.britishlivertrust.org.uk/content/home/default.asp

CDC - Hepatitis C page (government)
http://www.cdc.gov/ncidod/diseases/hepatitis/c/index.htm
http://www.cdc.gov/ncidod/diseases/hepatitis/ (Viral Hepatitis Main Home Page)

Deutsches Hepatitis C Forum e.V. Germany (most of site is in English)
http://www.hepatitis-c.de/hepace.htm
The only place you'll see German is in the "Literature" link, but there is an English option in the sidebar. This is a great site - lots of information and resources pertinent to the U.S. See also their page on Alternative resources under my "Alternative & Complementary Treatments" section.

Epidemic.org Hepatitis C
http://www.epidemic.org/
Designed and developed by the C. Everett Koop Institute at Dartmouth College

FAIR Foundation
http://www.fairfoundation.org/
The Fair Allocations In Research Foundation
$3,084 is spent on research for every AIDS patient, while only $25 is spent on the HepC patient.

Healing Well's Hepatitis Library
http://www.healingwell.com/library/hepatitis/

HCV Advocate
http://www.hcvadvocate.org/

The Hepatitis C Support Project(HCSP), is a non-profit orgnization founded in 1997 to address education, support and services.
Also see HBV Advocate for Hepatitis B information, and the "Hepatitis B" heading in the sidebar at right.

Hep C Challenge
http://www.hepcchallenge.org/
HCCAP (Hepatitis C Caring Ambassadors Program) The book, below, is an excellent resource. The graphics are a little challenging, as the links to the chapters are all put together like a paragraph at the bottom of the page and in quite small print. It is, however, worth the effort.
  • Hep C Challenge's Online Book: "Choices" http://hepcchallenge.org/choices/coverpagep.htm
  • While the links to the chapters are found in the link just above, the Table of Contents is here in a wonderfully readable form, but here there are no links, just the text.
HepC Coalition
http://www.hepccoalition.com/

Hep C Connection (in Denver, Colorado)
http://www.hepc-connection.org/

This is an "education, support, and prevention network for those affected by, or at risk for, hepatitis C." It is "one of the nation's premier hepatitis C-focused advocacy organizations and the only one of its kind in Colorado." There is a 28-page pdf Resource Guide at their site.

Hep C Network - NHCAC - (National Hepatitis C Advocacy Council)
http://www.hepcnetwork.org/
National Hepatitis C Advocacy Council



Hepatitis C Information Central
http://hepatitis-central.com/

Hepatitis C/HIV Multicultural Outreach
http://www.hepcmo.org/
in Kansas City, Missouri

Hepatitis Foundation International
http://hepfi.org/
In Silver Spring, Maryland

Invisible Disabilities Advocate
http://www.myida.org/

HepNet (Canada)
http://www.hepnet.com/
The Hepatitis Information Network
While there are a number of articles here, the site appears to be archival only, with no new entries since 2001 that I can find.

NASTAD Viral Hepatitis Program
http://nastad.org/Programs/viralhepatitis/
National Alliance of State & Territorial Aids Directors: Bridging Science, Policy and Public Health (A non-profit national association of state health department HIV/AIDS program directors)

NATAP National Aids Treatment Advocacy Project
http://www.natap.org
963 articles on Hepatitis C
346 articles on Hepatitis B

NHS Hepatitis C Awareness (UK)
http://www.hepc.nhs.uk/index.asp

Public Health Agency of Canada - Hepatitis C
http://www.phac-aspc.gc.ca/hepc/hepatitis_c/index.html

The Hepatitis C Trust (UK)
http://www.hepcuk.info/data/usercontentroot/home/
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ALTERNATIVE & COMPLEMENTARY METHODS

NOTE: When choosing an alternative care practitioner, it is crucial that you inform yourself on the appropriate education your practitioner should have. For naturopaths, their degree should come only from medical schools that are accredited by the Council on Naturopathic Medical Education (CNME). This is the ONLY accrediting agency recognized by the United States Dept. of Education for accrediting programs in naturopathic education. Your naturopath should also have passed the required state and national licensing exams and they should, even if living in a state that does not yet have a licensing program of naturopaths, be licensed in a state that does. (Most of the wording of this information is taken from the Colorado Association of Naturopathic Physicians website.)
The only accredited Naturopathic schools in this country are:
There are other colleges in the process of accreditation. You can see this list on the Education and Training page of the COANP. I have not yet compiled info on appropriate credentials for other alternative practitioners such as homeopaths, Chinese medicine practitioners and the like. (Naturopaths often do include homeopathy and Chinese medicine in their practices, among other things.)

- - - -
It is always a good idea to check the dates of any information that appeals to you to determine whether or not it affects the validity of the article.

Bastyr University (Naturopathy)
http://www.bastyr.edu/default.asp
Type "hepatitis c" into their search box.

Canada's Hepatitis C Resource Library
http://www.phac-aspc.gc.ca/hepc/pubs/nc-hcp-sn-is/chapter6_e.html
Includes a list of herbs that are toxic for Hepatitis C

Chinese: Doc Misha's Hepatitis C Help
http://www.docmisha.com/applying/hepatitis_help/index.html
Chinese: Your Liver, Springtime and Traditional Chinese Medicine
http://www.hepcprimer.com/wordpress/2006/04/20/your-liver-springtime-and-traditional-chinese-medicine/
from Nicole Cutler, L.Ac., Hep C Primer, April 20, 2006

*Deutsches Hepatitis C Forum e.V. - Alternatives to Interferon
(Is in English) http://www.hepatitis-c.de/alternae.htm
Note on May 12, 2008: I see that the english version is no longer attached to these links, and I can't, with a quick exploration, seem to find an english version anywhere. Too bad, for there was lots of good info here. I'll try sometime in the next month to see if it exists anywhere.
Healthy Hepper
http://www.healthyhepper.com/

Hepatitis C: A Retrospective Study, Literature Review, and Naturopathic Protocol
http://www.findarticles.com/p/articles/mi_m0FDN/is_4_5/ai_65068473
18 pages long (small web pages)

Hep C Challenge's Online Book: "Choices" http://hepcchallenge.org/choices/coverpagep.htm
This book is mentioned in the "Organizations" section above, and has several chapters on alternative care. Here are direct links to those specific chapters:


Herbs That Are Toxic To the Liver (List of)
http://www.phac-aspc.gc.ca/hepc/pubs/nc-hcp-sn-is/chapter6_e.html
From Canada's Hepatitis C Resource Library

Natural Therapies and HCV
http://www.hepcvsg.org/nattoc.htm
Canadian Darlene Morrow's site

Naturopathic Treatment of Hepatitis C
http://www.hepcvsg.org/bayley1.html
Dr. David Bayley, BScK., N.D., North Vancouver

NCCAM (NIH - National Institutes of Health)
http://nccam.nih.gov/
National Center for Complementary & Alternative Medicine
Enter "hepatitis c" (in quotes) in the search box at the top right corner of the page. Or go directly to the Hepatitis C page here:
PubMed: A Conservative Triple Antioxidant Approach to the Treatment of Hepatitis C
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=
PubMed&list_uids=10554539&dopt=Abstract
Integrative Medical Center of New Mexico, New Mexico State University
Las Cruces, NM

University Health Clinic Specialty Care and Research Center
http://www.universityhealthclinic.com
/hepatitis-treatement-seattle.html (Yes, the spelling error in "treatement" is necessary for the URL to work)
Alternative treatment for Hepatitis C in Seattle (with very strong ties to Bastyr University). This is a one-of-a-kind center in this country - the largest for alternative treatment for Hep C.
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